Before June 12, 2012, I had never heard of Pancreatitis before. I had no idea what it was and I had no idea how it was about to change my son's life forever. My son has always been healthy and I never took that for granted. He has extra challenges in life because of his Autism, so I have always been very thankful for his health. When he started complaining of stomach pain on June 11, we knew something was up, but we suspected a virus or possibly indigestion. He had previously experienced some issues with bowel movements, so that wasn't far from our minds either. When we took him to the doctor, they couldn't find anything wrong with him and prescribed him liquid Zantac. We got him McDonald's after the visit because he said he was hungry and we thought that eating might help. Also, McDonald's is his most favorite meal and going to the doctor is not fun. When we got home and gave him his food, he ate 2 french fries and quit. This was unusual, but he'd done this before when sick and so we just thought that he would start throwing up soon. We tried to give him the Zantac, but the flavor of it made him throw up. We really thought that we were in for a 24 hour bug and that he would start throwing up more and that it would wane later on. He didn't vomit again though. He just seemed like he didn't feel well, but continued to play his video games and chose not to eat. As long as he acted ok, we weren't too concerned. The rest of the day and night went fine and we just kept a close eye on him and noted his behavior.
Facebook post from June 11:
I have a sick Shadybug on my hands. He has
just been laying around all day and won't eat. Not even his favorite
McDonald's. He keeps saying his stomach hurts but he had a normal bowel
movement and farted. The doctor gave him some liquid Zantac and it was
mint flavored and he didn't want to take it. We got a little in his
mouth and he threw up everywhere. He had a bath and is sleeping on me on
the couch. I don't know if he would have thrown up regardless of the
medicine. If he still says it hurts when he wakes up we may try the
medicine again mixed in juice or something. I hate seeing him sick. It
makes me feel so helpless.

The next morning, it became apparent that he was not feeling better at all and now he was lethargic and becoming very vocal about the pain. We called his doctor's office to find out what they wanted us to do and they said to take him to the emergency room to at least receive IV fluids. We weren't alarmed but were definitely starting to become more concerned. Could he have appendicitis or something along those lines? Will he need surgery? It was a little scary, but playing the "what if" game was not helpful. It was a very long stay in the ER as they hooked him up to IV fluids and monitored his temperature and blood pressure. They took blood to run several tests and we waited and waited and waited. Luckily, Shade didn't seem to be in that much pain, but he was weak and tired. He watched TV and just sort of lay there. The ER doctor eventually informed us that his pancreatic enzyme levels were very high and that she suspected pancreatitis. She said it was rare in children and since Shade had not had any abdominal trauma like a bicycle accident and he had not traveled to any foreign countries or anything of that nature, that they were not sure why he had it. He had an ultrasound and a CT scan which revealed an fluid around his spleen and nothing more. Our local hospital was ill equipped to handle a case of pancreatitis in a child and they wanted to transport him to Kosair Children's Hospital about 45 minutes away. The problem was that there had been a wreck involving a day care van that evening during rush hour and fourteen children ranging in age from five months to nine years old were being treated at Kosair. They could not accept the transfer at the time they were called but said to call back later after things had calmed down. So, we waited some more. Hours passed and finally a little before midnight, Shade and I got in an ambulance and rode to Louisville. I was relieved that they didn't have to use the siren. Shade would have freaked out from the noise. Sometime before we left he developed a fever. We arrived at the Kosair ER after midnight and they were still pretty busy. We were put in a room that they didn't normally use for patients, but more for storage. Dan arrived very shortly after the ambulance. There was only one chair so Dan let me have it and he sat on the floor. They disconnected him from the IV fluids, took his vitals and left. We waited some more.

The rest of that night is a little blurry because we were so tired from all of the worry and the waiting and not having anything to eat or drink. All I remember is finally being admitted at about 5:00am. We got settled in the room and tried to rest, but hospital days start early and we had to answer a ton of questions from many different nurses and doctors. We got so tired of repeating ourselves. Shift change was at 7:30 and then the doctors start making their rounds. We saw a team of residents and a GI specialist. They were trying to determine the cause of the now officially diagnosed Pancreatitis. Dan got us some breakfast from the McDonald's downstairs and we ate separately in the bathroom so that Shade wouldn't have to watch us eat even though he doesn't like breakfast foods. At some point that morning, my Mom and Dad and Dan's Mom and Dad came to sit with Shade while we went home and packed some essentials, showered, and took a nap. I was sooo exhausted but I couldn't sleep soundly. My baby was at the hospital and this was serious. His pain was well controlled and he was resting comfortably, but I was still worried. At this point I still didn't even really know what pancreatitis was. Over the course of Shade's hospital stay, he had several ultrasounds and x-rays. He had a full bowel and was given a stool softener which worked VERY well. He also developed pneumonia at some point from laying down too much. We didn't know that was a risk or we would have encouraged him to get up more. We thought we were doing right by letting him rest. The treatment over the course of the hospital stay was that Shade was allowed nothing by mouth for the first few days to allow the pancreas to rest. Then after a while he was allowed to sip clear fluids. Then he was finally allowed to eat a little and finally on the 18th, we were allowed to go home. Shade was very happy to hear that. At some point during the hospital stay, his pediatrician called me himself to apologize for missing his diagnosis. He admitted that the Zantac was prescribed as a placebo and said that he missed the signs of pancreatitis because it is rare in children. I was about to become all too aware of how little some doctors know about pancreatitis.
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