Update from 10/16/14

Hi everybody!  Sorry for the late update, but it has been an incredibly long day and we just now got settled into our room and I have a minute to type.  Shade did fine during the ERCP and so far no pancreatitis!!  We were really scared about that.  This means that we will hopefully go home tomorrow sometime. :)  That is the good news.  The bad news is that they could not see as much as they wanted to and they think he has a stricture in his pancreatic duct.  There are a couple of different ways that they might try to fix that, but that is for another time.  The other bit of bad news is that they were not able to use his port.  Apparently, the surgeon who installed it put it in really deep and they would need a 2 inch needle to reach it properly.  This hospital does not have any 2 inch needles because they feel that having a port that deep is too risky.  There is a greater chance of not putting the needle in the port all the way and the medicine going under his skin instead of into the port.  If we want to continue our care with Cincinnati Children's and we want them to use the port, we will need to have the port moved.  I don't think that will happen at this visit either, but we will know more tomorrow.  I wish I had more answers about stuff, but now you guys know what I know.  I will update sometime tomorrow.  We are all exhausted.